Robbie's MRI

Our morning started early when Robbie decided he was most definitely WIDE AWAKE at 4:35 am. I'll admit that this made me a bit anxious about how the morning would go, since he couldn't nurse until a while after the MRI. I had been hoping that he would sleep later so he wouldn't be conciously hungry as long. He and Lee hung out downstairs and graciously let me sleep a little longer, and then we all got ready and headed out the door. First stop: our sweet friends' house so that Jocelyn could spend the morning playing with her friend Sutherland. (Thanks again, Dana! You rock!) Second stop: Starbuck's for my pumpkin chai latte. Third stop: the hospital.

And, oh yes, we were THAT family. The parents taking pictures of everything. (As you'll see by the plethora in this post!)

Here we are in the waiting room. Robbie has always been a thumb sucker, but I've never seen him suck his thumb as much as he did this morning. Poor guy had to settle for something in the absence of food!


And, you can't see in the picture above, but his sleeper outfit says "baby" across it. I chose that one since the nurse who called the day before to remind us of the procedure asked to speak to "Mr. Dingle" to confirm his appointment with him. I figured it might be helpful to have his chest emblazoned with "baby" in case they got confused about his age again. :)

However, that was short-lived because, as you see in the picture below, we switched outfits in the waiting room. Because, really, what says "baby" better than having it written across your chest? Oh, yeah, that's right ... having a diaper blowout. Robbie: 1, baby sleeper: 0.



Yep, there's that thumb again. And Momma's smiling because I wasn't sure if I'd get to snuggle with him much this morning. I was expecting him to cuddle more with Lee since I thought that cuddling with me could be hard for him while he was hungry. Thank God that was not the case! It seems that he decided that the next best thing to nursing from Mom would be cuddling with Mom. YAY!



Getting his blood pressure taken



Putting on his gown



Cuddling with Momma (and still sucking that thumb!)



"What? You wanna sedate me? Nah..."



"...I've been up since 4:35 am. I can pass out on my own."



"Eh. Nevermind. I'll wake up again for fun with Daddy!"



Even though Robbie was starving, Lee could still get him to laugh and smile some! True to typical Robbie-man temperament, even hunger didn't faze him much. All those prayers for him to handle it well were answered with a big YES! Thank God!



"What are you looking at? We're behaving ... kinda."



Crazy Robbie eyes after getting the first dose of sedatives



Sedative haven't kicked in yet ten minutes later...



Sedatives still not doing much, but we turned the lights down and listened to Celine Dion's CD of lullabies ... and investigated our feet! In the picture below (taken with flash ... you know, since that's helpful when you're trying to get the baby to sleep), you can't see what's so fascinating about the feet, but ...



...without flash, "hey, look, Mom, my toe is red!"



After the second dose of sedative, he's knocked out with sensors in his nose (to monitor breathing) and on his chest (to monitor his heart).



It was a big stretcher for such a little guy!



We had to leave our camera after that, since metal objects + MRI = not a good idea. But we were able to sit in the MRI room with Robbie and watch his vitals the entire time, which was nice. The MRI itself took about 45 minutes.

Robbie woke up almost immediately after he came out of the machine. One of the two requirements before we went home was that he be able to hold his head up well before we left. As you can see from this shot of us wheeling back into the exam room, he had that under control! However, he was not happy about any of it at that point. If he could talk, I'm pretty sure he would have said, "That's it! I'm DONE!"


And that ends the pictures! I had to leave the room after that because the second requirement for us to go home was that Robert had to drink two ounces of juice or Pedialyte and keep it down for at least 30 minutes. It was about 10:30 at this point, and he hadn't had anything since I nursed him at 1am. Every time any of us tried to offer him the bottle, he cried and tried to get to me to nurse. Lee says that he readily accepted the bottle about 20 seconds after I left! I hung out in the waiting room for a bit and made some calls, and little man chugged 3-4 ounces. This was FANTASTIC because it meant that we could go back to nursing as soon as we got home. (The plan had been that he needed to take 1-2 ounces at the hospital and then another 1-2 ounces at home before he could nurse again.) Another blessing was that he had NO side effects other than the expected grogginess for the rest of the day. We were told to expect some stomach problems, and he had none. Praise God!

We should get the results by Monday, though we're praying that they'll be available sooner. Our pediatrician will discuss the results and next steps (if any) over the phone as soon as she has the MRI report, and we'll keep you updated. Thanks for your prayers, notes, emails, and calls. They have been such an encouragement right now!

Not understanding the circumstances

Tomorrow is the MRI for Robbie. I was sharing with a friend last night that my biggest concern isn't the results, since we're totally trusting God with all of that. I told her that what still had my stomach in knots was the thought of tomorrow morning. Robbie can't nurse after 1:30am because he has to be sedated. We have to be at the hospital at 7:30am. As I told my friend, by the time of the MRI at 8:30am, he would have nursed twice, sometimes three times, on a typical day (since our little man cluster feeds in the morning). I told her that he would be hungry and crying and wouldn't understand why Mommy wasn't feeding him. I told her that the part I was dreading of all this wasn't the MRI or the wait for results (not sure how long that'll be) ... but rather the morning of seeing my son hungry, being capable of feeding him, and choosing to withhold that from him. Tears are coming to my eyes right now as I anticipate his cries as he can see Mommy but can't understand why Mommy won't feed him. There isn't a way for me to explain to him why he's hungry or to explain to him that it's just temporary or to help him understand that nothing will keep me from nursing him as soon as the medical professionals give me the green light. I know all of that, but he won't. He can't grasp that we're letting this occur for his good, so that we can see what his spine looks like. And it's likely that he'll be crying, upset and confused and hungry, not understanding the circumstances at all.

And as I thought about this tonight, it brought me back to my favorite thing about parenting: what it teaches me about God.

"For my thoughts are not your thoughts, neither are your ways my ways," declares the LORD. "As the heavens are higher than the earth, so are my ways higher than your ways and my thoughts than your thoughts." Isaiah 55:8-9
How many times have I cried, not understanding the pain or discomfort of my circumstances? How many times have I thought I knew exactly what I needed, praying in a way that tries to demand, "God, give me this," as if I know my needs and the big picture better than He does? And, yet, our wise Father has reasons for withholding what I think I need. Looking back at my past, I can understand some of those reasons now. Other reasons I may never understand. But my prayer tonight is that I'll remember this the next time I'm crying to God about something that has made me upset, confused, and hungry. And that, in that moment, I'll be reminded that our sovereign God causes and allows those moments in our lives as part of His plan for our good and His glory, just as Lee and I are going to allow some discomfort into Robbie's life tomorrow morning because it's part of a plan we've made with his doctor for his ultimate good.

I am SO thankful that God has given me the sweet blessing of mothering these two darlings! And I am amazed by the lessons He teaches me as I live out that blessing every day.


(Oh, and my sweet friend - the one who I shared these concerns with last night - told me that she had had similar concerns when one of her babies had to have some procedures done. She prayed that it wouldn't be an issue, and it wasn't. There were no tears, no fits, no angry baby-ness, even though her little one was hungry. That made me realize how much I limit my prayers! Instead of praying that God will help me deal with Robbie's cries tomorrow, I'm now praying that He will supernaturally comfort Robbie even though he can't eat. And, just as Azariah, Hananiah, and Mishael answered Nebuchadnezzar in Daniel 3:16-18, my attitude is simply that God can do that ... but, even if He doesn't, He is still God and we still trust Him.)

Robster's six-month stats and more...

Our little guy is now six months old! Wow!

We had his appointment on Thursday, and here are the latest stats, plus a request from us to join us in prayer about one concern:
  • Height: 26.5 inches (50th percentile)
  • Weight: 14 lbs, 2 oz (below the 5th percentile)
  • Head circumference: 44cm (above the 50th percentile)
  • He dropped a percentile in height and one or two in weight, but our doctor isn't too concerned about that unless he has dropped again by his nine-month appointment. He has a healthy appetite, so I don't think we'll have any issues. He's just a little guy!
The one thing that we'd love your prayers for is his spine. I'm not going to get into all the details here, but he has a couple of physical indicators for spinal abnormalities (like a mild form of spina bifida or a tethered spinal cord syndrome). It is probably nothing, but to be sure our pediatrician ordered an MRI to check it out. We'll be going to local hospital for that on Thursday morning, and we'd love your prayers that the doctors will be able to see exactly what they need to see ... and, preferably, that there would be no problems there for them to see. Also, he'll have to be sedated for the MRI, so please pray that all goes well with that. And, finally, my next IV infusion for my arthritis medication is supposed to be on Thursday afternoon, and it can't be rescheduled unless someone who is supposed to come on Tuesday or Wednesday cancels. Please pray that a cancellation would occur so that I can be free to stay home with Robbie for the rest of the day Thursday after the MRI (especially since I have no idea what his nursing schedule will be like in light of the sedation and since, while he takes a bottle just fine, he prefers momma).
Thanks, friends!

Oh, and here are some shots of him from a few days ago, as he tried out Jocelyn's chair!







Minky forever

The minky is still her favorite possession. It is a toy, a cape, a lovey, a baby; simply put, it is whatever her imagination can turn it into! I was nervous this evening that it was gone. I felt silly praying that God would bring her minky home safely ... but, boy, was I praying! Heather has made her additional minkies, and Jocelyn has deemed other loveys "mimis" (her word for minky) as well. However, when she gets hurt or tired, it's the purple minky she wants, and nothing else will do.

And, yes, Robbie has his own green minkies. (Yes, plural - so we have a back-up!)