Welcome to Holland movie clip

If you're not familiar with Emily Perl Kingsley's piece about disability, Welcome to Holland, then you've been missing out. It's an analogy comparing having a child with a disability with ending up in Holland on a trip planned for Italy. And, even if you have read Welcome to Holland before, you'll want to watch Tyne Daly in this clip from Kids Like Us - a CBS made-for-TV movie from 1987, also written by Kingsley - as she delivers it in a powerful way.

disability ministry weekly round-up {12-12-11}

Because of a two-week round trip over Thanksgiving and then our Christmas respite outreach event just a week after we returned, we didn't deck the hall with Christmas decor until yesterday. My momma's Episcopalian family never took their decorations down until Epiphany (January 6), a tradition we've adopted as well, so we'll still have a while to enjoy them! (Plus trees are cheap when you wait!) I am loving the holiday feel around our house now.

And on to this week's posts...

The Obsessive Joy of Autism: This post is fitting, given my series last week. It is helpful for us to realize that not all people with disabilities consider themselves to be suffering. This woman with autism loves the obsessive joy it brings. (Keep in mind that many families and individuals with disabilities are suffering and grieving too, so don't overgeneralize this to everyone. Just don't be surprised if what you think is suffering is perceived by another in a more positive light.)

Adopting a New Purpose: After the Clarks' daughter was born with Down syndrome, they felt called to parent more special-needs children I think the title says it all.

Sam Luce blogged last week about special needs ministry. He is a respected children's ministry leader who has many more readers than this blog, so I am thankful he has cast light on a ministry area I love. Here are his posts:
Six helps for suffering: I love me some Elisabeth Elliot. Short, sweet, and powerful.

Help Me Give An iPad to an Autistic Boy Karl Bastain, a children's pastor known online as the Kidologist, is raising money to give a boy from his church an iPad and apps, and he's asking his kidmin friends online to help.

Letting Ruth Go Get the Kleenex for this story about the death of one child with special needs, adopted from Uganda, and the Joni & Friends mission trip that allowed the parents to outfit another little girl from Uganda with their daughter's wheelchair.

Christmas form letters that should have been: 2005 I'll admit that last year, I fought to make our Christmas letter cheery. I was struggling with my health - literally struggling to even breathe with a nasty bout of pneumonia - but I wanted that annual update on our family to express a joy that I just wasn't feeling as I wrote it. This author of this post felt the same in 2005, as her daughter was in the process of being diagnosed with autism.

Those Closest to Us Hurt Us the Most | Raising a Child with Special Needs This article ties in with the previous one.

Giving a break to those who need it most I witnessed some of the richness of McLean Bible Church's Access Ministry at the Accessibility Summit conference last spring, but I didn't get to visit their respite care facility, Jill's House. This article profiles what they're doing, and I look forward to checking it out myself when I'm back at McLean to speak at this year's Accessibility Summit.

Pastor John ruined my morning A post from John Knight last week with a great video. Check it out!

Loving the 1% This isn't directly related to special needs ministry, but I think it is indirectly. Among those of us who are engaging in disability ministry, I sometimes witness an attitude that what we're doing is somehow more important than those serving in ministry to kids, teens, and adults who don't have disabilities. This post challenges
Are we ready to show grace to the greedy, corrupt business owner in the same way we show it to the drug-addicted prostitute? Are we ready to view the crooked politicians in the same way we view the inner-city gang members: as depraved sinners in need of a Savior? In our current cultural climate, it is very popular to hate the 1%. Are we ready to love them? Are we ready to serve them? Are we ready to give our lives to reach them? Jesus is.
And I'd like to add, "Are we ready to show love to all people, disabled or not?"

Special Families...A Casserole's Not Enough This booklet, by Jackie Mills-Fernald and Jim Pierson, can help churches love and support families affected by disability. Excellent.

Anxiety and the Child of Divorce: Kids whose parents are divorcing might not meet the criteria for an anxiety disorder, but they are experiencing anxiety nonetheless. This post is helpful.

Churches engaging in disability ministry:

Will disability exist in heaven? Part 3: Well, what's the answer?

This is the final post of three, each addressing different aspects of this question: Will disability exist in heaven? It's not an easy question, so you might want to read the previous two posts before reading through this one.
My first answer would have been no. I'm not sure when I realized that I could be wrong, but it rocked my world. I've been trying to write this post for several months, and I couldn't get the words right. (And I might still not be able to, so I'm praying that God will cover over my faults and make himself clear here, despite my imperfect delivery.)

This series of posts has gotten more attention than usual, so let me take a step back to introduce myself and my context if you're new here. I coordinate disability ministry at Providence Baptist Church in Raleigh, NC, and get the opportunity to work with families each week whose lives are affected by disability. And I have a couple of chronic health issues, including one that has resulted in a mild degree of physical disability.

So what's the answer? Will disability exist in heaven?

1. Heaven cannot include any aspect of disability that causes tears or death or mourning or crying or pain or thirst or hunger, per Revelation 21:4 & 21:6, Revelation 7:16-17, 1 Corinthians 15:26, and Isaiah 35:10.
For myself, I can answer the question posed by this series easily. No, my physical limitations will not exist in heaven. I know that for sure because several of the first five verses I shared yesterday tell us that no pain or crying or mourning will be there. I am in pain now, and the greatest written authority we have - the Bible - lets me know that eternity will not include rheumatoid arthritis. Any disability that includes pain will either be gone in heaven or redeemed (i.e., the condition still present, but the pain gone). Kids won't have congenital heart defects or difficulties eating or tearful anxiety or an inability to communicate or anything else like that in heaven. Neither will adults.

2. If heaven does include the aspects of disability that cause sighing and sorrow here on earth, they will be transformed into joy and gladness in heaven, per Isaiah 35:10. 
Many of the tears and sighing and sorrow among those with disabilities are not the result of the disability itself but rather the response of others. When a mom has to pay the neighbor kids to come to her child's birthday party, the sorrow isn't the child's disability but the isolating response - or lack of response - from the families who have to be bribed to attend. When my friend Donna's son was asked not to return to the youth program at church because of his disability, her pain wasn't caused by the disability but by the people in the church. The emotional pain of disability - the exhaustion and exclusion, for example - will be left behind, even if other aspects of the disability last beyond this world.

As far as the aspects of disability that aren't inherently painful but do - in the response of others - cause pain here on earth, what will stay with us in heaven and what will be left behind?

3. We're not going to care what the answer is once we get there, per Romans 8:18 & 24-25 and 1 Corinthians 5:7.
I know people with autism who believe that they'll have autism in heaven, because they would be someone else completely without it because that's so much of who they are. I know others who are looking forward to an autism-free eternity. In my post on Wednesday, I shared the views of a few parents who hope and expect that their children will still have Down syndrome in heaven, but I know other parents who are hoping to get to know their child minus the Down syndrome in heaven. So who will be disappointed when they find out they're wrong? Neither. They'll be in heaven, and no one will be disappointed by what's in store there. If anything is different from our expectations, it'll be different in a very, very good way.

So why bother considering this question as a church leader or member involved with people with disabilities? If we can't truly answer the question in full because we won't know for sure until we get there, what's the point of this conversation? If now we live by faith and we don't know what living by sight will look like just yet, what does that mean for the church?

This conversation is worth having because it challenges our biases. Considering the possibility of a heaven with Down syndrome, for example, challenges the oft-condescending approach to disability ministry of the superior us helping the inferior them. We're more likely then to invite those with disability to serve and not just be served in our churches. When we consider the aspects of disability that expose the flaws of our culture and perceptions, then we're forced to realize that maybe we're the ones with the problem in need of fixing.

The other takeaway is that some people with disabilities consider their special needs to be temporary suffering while others think that they are eternally connected in identity to their disabilities. In the absence of a clear answer from scripture, I don't think it's our place to declare either wrong or right. It is our place to welcome those with disabilities, even if our answers about disability in heaven aren't identical. We are all the body of Christ, with each part designed differently by the choice of the Designer (1 Corinthians 12, especially verse 18). 


And how about you? What do you think? Have these three posts changed your way of thinking about disability and heaven? 


I'd love to hear what you have to say, so please join the conversation by leaving a comment!


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Will disability exist in heaven? Part 2: What do we know about heaven?

In case you missed yesterday's post, it might work best to start there, and if you find today's and yesterday's posts thought-provoking, then you won't want to miss the wrap-up post tomorrow. Here's the list of posts:
First, let me acknowledge that I'm not a theologian, and I'm sure this is not a perfect answer. I am aiming to answer the question of what we know about heaven directly from God's word, but I may overlook key passages. Feel free to point those out or add to the conversation in any other way by leaving a comment!

Second, I'm not planning to address every aspect of what we know about heaven, just the aspects that relate to the question of disability in heaven. If you're looking for info about the streets of gold and about the absence of the sun (because of the presence of the Son!), then I'm sure Google can be your friend to find that sort of post.

Finally, today's post isn't going to answer the question of disability in heaven. That will come tomorrow. Today I just want to identify the verses that help us get to that post. Please be aware, though, that I will bold sections of each verse to highlight some key phrases leading to our answer.

And now, what do we know?

There will be no more tears or death or mourning or crying or pain or thirst or hunger or sorrow or sighing in heaven.
  • He will wipe away every tear from their eyes, and death shall be no more, neither shall there be mourning, nor crying, nor pain anymore, for the former things have passed away. {Revelation 21:4}

  • And he said to me, "It is done! I am the Alpha and the Omega, the beginning and the end. To the thirsty I will give from the spring of the water of life without payment."{Revelation 21:6}

  • They shall hunger no more, neither thirst anymore; the sun shall not strike them, nor any scorching heat. For the Lamb in the midst of the throne will be their shepherd, and he will guide them to springs of living water, and God will wipe away every tear from their eyes." {Revelation 7:16-17}

  • The last enemy to be destroyed is death. {1 Corinthians 15:26} [nope, that's not just the inscription on the gravestone of Harry Potter's parents; they were God's words first!]

  • And the ransomed of the LORD shall return and come to Zion with singing; everlasting joy shall be upon their heads; they shall obtain gladness and joy, and sorrow and sighing shall flee away. {Isaiah 35:10}
A longer passage along the lines of those shared above is Isaiah 65:17-25:
"For behold, I create new heavens
and a new earth,
and the former things shall not be remembered
or come into mind.
But be glad and rejoice forever
in that which I create;
for behold, I create Jerusalem to be a joy,
and her people to be a gladness.
I will rejoice in Jerusalem
and be glad in my people;
no more shall be heard in it the sound of weeping
and the cry of distress.
No more shall there be in it
an infant who lives but a few days,
or an old man who does not fill out his days,
for the young man shall die a hundred years old,
and the sinner a hundred years old shall be accursed.
They shall build houses and inhabit them;
they shall plant vineyards and eat their fruit.
They shall not build and another inhabit;
they shall not plant and another eat;
for like the days of a tree shall the days of my people be,
and my chosen shall long enjoy the work of their hands.
They shall not labor in vain
or bear children for calamity,
for they shall be the offspring of the blessed of the LORD,
and their descendants with them.
Before they call I will answer;
while they are yet speaking I will hear.
The wolf and the lamb shall graze together;
the lion shall eat straw like the ox,
and dust shall be the serpent’s food.
They shall not hurt or destroy
in all my holy mountain,"
says the LORD.

As we look forward to heaven, it is wise to remember that earthly suffering may be great, but the glory of God is greater.
For I consider that the sufferings of this present time are not worth comparing with the glory that is to be revealed to us. {Romans 8:18}

And that faith requires hope in what we cannot see yet.
  • for we walk by faith, not by sight. {2 Corinthians 5:7}

  • For in this hope we were saved. Now hope that is seen is not hope. For who hopes for what he sees? But if we hope for what we do not see, we wait for it with patience. {Romans 8:24-25}
And, as we consider all this, we need to be mindful that we can only have this conversation because of the grace demonstrated in the gospel of Christ. Heaven is only an option because Christ's birth, life, death, and resurrection achieved for us what we could not do on our own. Praise be to God for providing his son as the substitutionary atonement for our sins!
  • But he was wounded for our transgressions; he was crushed for our iniquities; upon him was the chastisement that brought us peace, and with his stripes we are healed. {Isaiah 53:5}

  • For Christ also suffered once for sins, the righteous for the unrighteous, that he might bring us to God... {1 Peter 3:18}
Tomorrow I'll give you my answer to the question, Will disability exist in heaven? After having read yesterday's and today's posts, though, I'd love to know the answer to this question: What do you think?


~+~
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Will disability exist in heaven? Part 1: Why ask the question?

I bet your knee jerk reaction is no. But it's a little more complex than that. That's why this post will be split over three days:
  1. Why ask the question? (Today's post)
  2. What do we know about heaven? (Tomorrow's post)
  3. Will disability exist in heaven? (Friday's post)
Consider these comments I've found on blogs around the web. First one from a Canadian named Dave who, according to his bio, has worked in the field of disability for 30 years, became disabled himself a few years ago, and uses a wheelchair when out and about around Toronto:
Yes, of course, I've wished to be different than I am. I've wished to be without disability, without any difference at all. I've wished away my birth into the life of diversity that I've lived almost since my first cry. And those wishes are meaningless. I would never have wished away my 'sissy ways' if I hadn't been subject to brutality. I would never have wished away my 'attractions' if I hadn't been in fear for my life and livelihood. I would never have wished away my disability if I hadn't been constantly subject to pitying stares and withering glances. It takes time, you see, to understand that I was wishing away the wrong thing. I should have been wishing away bigotry and hatred and self righteousness. I should have been wishing away conversations like this one - that tell me that pride in myself is a foolish idea. I should have been wishing away a lifetime of discrimination. I wished away, not who I was, but how others reacted to who I was. I wished away, not selfhood, but the actions of hoodlums. I wished away pain inflected, not identity experienced.
Meanwhile, I had a conversation with Rick Smith (aka Noah's Dad) and a couple other commenters about Down syndrome and heaven. I asked if he thought Noah would have Down syndrome in heaven, and a couple of noteworthy responses were:
  • From Valerie: 
    I know you aren’t asking me – but I sure hope my daughter has Downs in heaven – it’s who she is. And I can’t believe that God made some huge mistake when he made her. I think Downs is this world’s problem, not God’s.
  • From Melissa: 
    I like this question….and I get asked this sometimes about my son. My feeling about him is that he is so amazing….he is so tender, so funny, so full of joy and love…and not to overlook he is also very smart (very!). My secret hope is that we all have Down syndrome when we get to Heaven. I agree with the other commenter on this question….I don’t believe God made a mistake with my son or that he would be better if he didn’t have Down syndrome. He is the happiest and sweetest person I have ever met.
  • From Rick: 
    We have to remember that Down syndrome isn’t like the flu, or a cold, or something. Down syndrome isn’t something Noahs “has” in that regard. We have to remember in the Bible there is a difference between “curing” and “healing.” They are different words, and have different meanings Biblically I’m not to sure Down syndrome is something that needs to be “cured.” However you, and I, and my son (with Down syndrome) and everyone on this planet needs healing…and will be healed in Heaven. If Noah looses his leg in a tragic water ballon accident, I’ll pray for his leg to be cured…and I’m sure it will be healed to perfection in Heaven. However, Down syndrome is all together different then any of that stuff. It’s his entire genetic code. You take that away, you take him away..he’d be a different person. We have to remember that when we say someone is “different’ or “special” or “disabled” we are comparing them to us. Using ourself as the measuring rod of what is considered “normal” or “typical.” The Bible does not say how many chromosomes make a person “normal” or “typical.” (and to be honest I’m not sure it really is that concerned with it. What’s The Bible is concerned with is not how many chromosomes a person has, but who made the person….which of course is God. And so while it’s interesting to think about these sorts of things….I like to spend more time helping people see that all humans are made in the image of God, and just because of that fact alone are valuable, important, and worthy of all of our love, and respect.
Temple Grandin has often remarked that she wouldn't want to be cured of autism because it would completely change who she is. Most Christians I've communicated with in the Deaf community - note the capital D because that's important here, although I don't have time to explain why - think that they will be Deaf in heaven as well.

Conversely, in the final chapter of Why, O God?, Joni Eareckson Tada writes that she will gladly send her wheelchair straight to hell after she meets Jesus face to face in heaven. Many other bloggers with disabilities or with children with disabilities look forward to heaven as a place in which the disabilities affecting their families will be no more. And Jen from Living Life With a Side of Autism wrote here that she would definitely give her daughter a pill to cure autism if there was one, sharing this:
Sometimes, I can see the person Katie could be, sans Autism. There are times when she has these clear moments...out of the fog...where I can see what life would be like for her without this monkey on her back. Autism to me is a parasite. This is something I have addressed before. I don't look at it as a life enhancer in any way, shape, or form. Not for Katie, at least.
Now, in light of all that, reconsider the question posed in the title of this post. Is it as easy to answer now?

Come back tomorrow for my response to the question in part two! 
And if you haven't done so already, go comment on my post about Different Dream Parenting so that you can have a chance to win your own copy. Just go here for that chance!