Favorite special needs ministry gear: JumpStart Trampoline (on sale at Target, today only!)

Every so often, I'll feature an item that we LOVE in our special needs ministry setting. This trampoline will start us off, because we love it and because it's majorly marked down TODAY ONLY at Target.com (get it here for $54.99; I think it was $75 on Amazon when we got ours).

So why do I like this one best?

  • The triangle shape with legs at each corner: It doesn't rock or flip like the round ones we've tried.
  • 80 pound limit: Higher than many others designed for kids that we considered. We've tested it up to that level without problem.
  • Bicycle bar handles: On other trampolines, I've seen kids flip over the straight bar (or at least try to!). You can't do that with this.
  • The noises: Yes, it can be loud and obnoxious, so we remove the batteries if we know a child who has sensitivity to sound is going to be in the room. However, some of our kids love to control the short noises and choose their own. 
  • Wipes down easily: Gotta keep those germies in check!
  • Textured foam hand grips: A lot of our kids like to touch the handles, even if they aren't bouncing.
  • The colors/design: This isn't the most important reason to get something, but I do like the look of it!
It was difficult for me to assemble, but I'm not the most skilled gal in that area. My husband put it together, and even he needed help in one step (I had to hold something while he put a screw in, I think). I don't share that to dissuade you from getting it, because we love ours, but I want you to know that you probably won't be able to whip this together by yourself.

And, finally, how do we use this? Well, we have a sensory break room where our one-on-one buddies can come with the child they're paired with. The room can be particularly helpful if the buddy notices that a child is going to have a meltdown and can change settings before that meltdown happens. In the sensory room, we have this trampoline, some pretend play toys, hand puppets, a variety of sensory balls (some squishy, some spiky, some stress balls, some textured), Benny the Bull (who we got for $20 or $25 on a deal of the day site), and several different sensory bins. Other than the trampoline and Benny, everything in the room was very low cost. I'll post more about those other items in the future!

We also use the trampoline during respite nights, in which it gets near-constant use for three hours. It has held up well!

There IS a right choice for schooling your child.

When Lee and I were considering school options for Jocelyn for kindergarten next year, everything was on the table. Homeschooling. Christian private school. Secular private school. Traditional public schools. Magnet schools. Charter schools.

We sought to talk to parent friends of ours who had school-aged children, hoping to learn from their choices and experiences. What did we learn?

That there IS a right choice for us, but there ISN'T one single right choice that applies across the board to every family.

That's where this blog post title comes in. I do think there's a right choice for schooling your kid. I just don't think the right choice for my family and the right choice for your family have to be the same thing.

I had a great conversation in the church hallway with another mom last Sunday. We have made different choices for next year, but we were still able to encourage one another. It was nice.

And, sadly, I think sometimes that sort of thing can be rare.

I think as each of us are convinced of the right choice for our own families, we can erroneously project that right choice onto other families. We live in a culture that increasingly preaches "what's right for you isn't right for me." And while that relativism can be dangerous in many areas, I think we need a healthy dose of it when we enter the slippery territory of comparing parenting choices that aren't laid out in scripture.

Are all parents responsible for teaching the truth of Christ to their kids and discipling them in God's word? Yes.

Will that happen in the same ways, at the same times, and through the same means in every family? No.

And what choice have we made? Well, I wish I had an answer. We are participating in the public school choice process, and we know which school we would like. We also know that we really, really, really don't like the other options. If we get the school we'd like, then Jocelyn will probably start in public school in the fall. If we get our choices two through five, we don't feel comfortable sending her to those. In that case, we'll apply for a transfer - listing our number one school as well as another one that isn't an option for us right now - and then, if necessary, go through the appeal process. (We are planning to move this year, but our number one choice would be the same, no matter where we live, because of the Spanish language program it offers. In other areas, though, we could have applied for that school as a magnet program last month, whereas that wasn't an option in our area since it's on our proximity list instead.)

(Let me pause our regularly scheduled program to explain: Our oh-so-helpful unbalanced ridiculous ignorant school board put a plan in place that gives each family a list of schools in proximity to their local address, a system that under the guise of "neighborhood schools" ensures that kids in each neighborhood will likely be divided among many schools. They've done this while also failing to communicate details clearly so that only the most educated and informed parents understand the process. I could continue on that rant, but let's get back to the process... For kindergarteners, we each have to rank at least five schools in order of preference. Our address's list only includes five schools, though, so I have to rank all our options. The choice period opened yesterday, but it doesn't end until late February, so we won't know anything for a while. The magnet school selection period was in December and those families have been notified, but any school on your address's proximity list doesn't appear as a magnet option for your family, even if it is a magnet option for other addresses.)

Homeschooling? Honestly, that's where we thought we'd end up. But now? We're open to it, especially if Jocelyn gets placed in a school we don't like and if none of our other options (including a couple of charter school lotteries we're considering) work out, but it seems that God is leading us toward public schooling. We aren't closing the homeschooling door with absolute certainty, but due to my health and a few other reasons, that's not the direction we expect to go.

And private school? Setting aside financial concerns, we've decided that we're not comfortable sending our kids to a school in which kids with disabilities aren't welcome, and that's the reality for most of the private school options in our area and all of the ones we think would be a good fit otherwise for our family. We spend a lot of time and energy working to eliminate barriers to church involvement for families with special needs, and it seems incongruous to us to spend our time doing that while supporting (albeit, passively) similar barriers in a school setting, particularly in a Christian school setting. (I don't share this to say that it is wrong to send your child to private schools that exclude kids with disabilities, just that we've decided that it would be the wrong choice for our family.)

So, yep, I do think there's a right choice for your child. And I think that choice could change from year to year. Shoot, it could even differ from kid to kid within a family, though I hope that's not the case for ours because I like the idea of keeping them in the same schools if possible.

Whatever your family's choice may be, I hope we can each encourage one another.


PS - The book Chasing Elephants: Wrestling with the Gray Areas of Life by Brent Crowe is an exceptional one about biblically working through issues in which a universal right choice is unclear (and about figuring out what areas are truly gray areas vs. ones that do have a clear black and white in God's word).

PPS - My friend at New Every Morning wrote a post on a similar topic at the beginning of the last school year: Calling a Truce. I highly recommend it.

Free online conference this Saturday with a focus on disability, prenatal recommendations, and abortion

I hope to talk with Jeanne Monahan of the Family Research Council later today to get a few more details, but I just found out about the First Annual Conference on Medical Advances in Prenatal Diagnoses.

Please don't let your eyes glaze over if medicine or science isn't your chosen field. It's not mine either.

But most visitors to this blog are at least marginally interested in welcoming people with disabilities into gospel-centered churches, which is what I get to do each week. And you probably know that I have not been shy about speaking against the abortion of unborn children with disabilities, in posts like this one. We, as the church, can't afford to be silent or uninformed on this topic when lives literally hang in the balance.

So when I read the description of this conference (which will be streamed live online THIS SATURDAY...oh, and it's FREE!), I knew I had to share it:

Council on Poor Prenatal Diagnoses & Therapeutic Intervention
Founding Partners: Medical Students for Life, Family Research Council, LeJeune Foundation, USA & Keep Infants with Down Syndrome

First Annual Conference on Medical Advances in Prenatal Diagnoses

The Conference will bring together professionals from many different specialty areas, including genetic researchers, ob/gyn physicians, developmental pediatricians, hospital nursing staff, medical genetic counselors and medical students.  Other invited participants and guests include peer ministry providers, social service support professionals, advocates for persons with disabilities and public policy specialists. 
The goals of the Conference are:
  • affirm the life and dignity of all persons, especially those diagnosed prenatally with a disability or lethal condition
  • review how information about prenatal diagnoses of disability or lethal condition is currently delivered
  • consider how this information might be delivered more comprehensively
  • consider the impact of a new blood test for Down syndrome in obstetric care
  • explain the work of the Council and its year-long engagement on prenatal diagnosis issues
  • review best practices for postnatal care of infants with disabilities in perinatal hospice and in hospital, home and medical daycare settings
An agenda for the day will be available soon. Our host for the day, the Family Research Council (FRC), has limited space, so this first Conference is by invitation only.  However, FRC will be webcasting all general sessions that day, which can be viewed viawww.frc.org.  For more information, contact Jeanne Monahan at Family Research Council, jmonahan@frc.org (202-225-4008) or Peg Kolm, at mlkolm@mindspring.com, (240-994-0603).We welcome your interest and expertise in this effort, and hope you can join us on January 21.

Here's another post about it from LifeNews.com.

Register HERE if you're interested. I'll definitely be tuning in.

disability ministry weekly round-up {1-15-12}

Did you learn anything new this weekend? As for me, I learned how to feed a child through a feeding tube so we can support a new family at our church. (While we don't provide medication on Sunday mornings and ask parents to do that instead, in children's ministry we treat feeding tubes the same way we treat bottles of formula we may have to mix: it's a feeding need, albeit with different mechanics.)

And on to the posts for this week...

Registration for my church's February 11th respite event: If you're in the area, please join us! Note that the main button at this link is for families to register, while volunteers will register by clicking the word here in the line "Volunteers may register here."

Today I Learned Something About Down Syndrome: This isn't a new post. It's over a year old. But it's a powerful account of a man working through his fear of the unknown to see the humanity of a woman with Down syndrome. (Favorite line: "This time I noticed her nametag." I would rather know someone's name than their diagnosis, wouldn't you?)

When Prayers Go Unanswered: Julia Roberts (no, not that one...) explains in this post why she struggles more with answered prayers than unanswered ones.

Your Presence is Requested - 2011 Reflections Jackie Mills-Fernald, the director of Access Ministry at McLean Bible Church, shares what she has learned through a tough 2011 about ministry, programs, and relationships.

D6 Press Release: I'll be speaking at this conference in September on special needs ministry as family ministry. Here's a bit more info!

Great sites for therapy ideas for kids with special needs This post has great info for parents, but it's also helpful - to a point - for ministry leaders. I say "to a point" because implementing special needs therapies isn't our job in the church; sharing the gospel so that all may treasure Christ is. Some sensory tools, though, are technically based in therapy but are also useful - and for some kids, crucial - for creating a welcoming environment.

Tempted to fear? APTAT This post, written by John Knight and pulling largely from a sermon by John Piper, provides a biblical way to deal with fear as a parent of a child with special needs. And don't miss the follow-up: Bitter or angry? APTAT

Is your church listed? Or are you a family with special needs looking for a church? 3 lists of disability ministries If you saw this post of mine early on Thursday, you might have missed one addition. I know these listings don't include all the churches who are welcoming to people with special needs, so please get the word out so that families know that there is a place for them in the church.

Tough topic, yet sensitive responses from Amy Fenton Lee at The Inclusive Church:
Here's one post from a blog I just found, written by a special needs ministry coordinator in California: The Church's View of Mental Illness, and Mine I'll be blogging about a second post of hers later this week.

Should we teach the Bible to those with severe cognitive disabilities? and a follow-up here: Two posts from John Knight (and don't mind the richness of the comments on the first one!)

As Christians, knowing isn't necessary (and it's ok to ask) Yep, another from John Knight. Really, I probably could have titled this post: A week of John Knight's blog, plus a handful of other posts.

my husband, the comedian

Alternate title: Because some things just don't fit on the other blog, you get them here.

(By the way, I do have intentions of posing here more frequently, as we're winding down home projects in anticipation of selling our house to move elsewhere in the City of Oaks. No promises or timelines, but I've missed this place. anywho...)


I showed Lee this logo and told him I liked it.

He said, "You have the love for wheelchairs?"

"No, no, no..."

"You love people who are seated?"

Sigh. Eye roll.

"Oh, I see it. You used to have love and then someone sat on it."

"Just go away. Now."

"I, too, am available to speak at conferences!" he boasted proudly, assuming a Superman stance (minus the cape, spandex, and letter on his chest, of course).

To which I, in true tongue-in-cheek Ephesians 5:33 Proverbs 32 fashion, responded, "I wonder why you haven't been asked to speak at any yet."

Unperturbed, he confidently replied, "I am undiscovered talent."