for when you yell at your new child for the first time

As we all walked together through the church lobby, one pastor complimented my crew on how well they were all holding hands and listening. Another quipped that we ought to have our own reality show.

Then, as one of our deacons held the door for us and whispered another compliment as we entered the service, my daughter said something. I don't remember what it was, but I know it was in the only volume she ever speaks in, which is more than "loud" but not quite "obnoxious." 

And then I did what any mother would do just after being commended by three different church leaders.

I snapped, "Shut. up."

Mother of the year? Not me.


But it was better for all of us than my reaction several months ago, which was to live in constant fear that my already traumatized kids would never, ever, ever, ever heal if I screwed up. Too many people have failed them, I told myself, and I can't be another person in that line of failures. Their ability to move forward in life or to stay stuck in past hurts is up to me and my handling of their broken places, I whispered to my already perfectionist self.

What should I have said to those self-spoken mantras? 

Shut. up.

You will fail.
You will yell.
You will do your best and screw up anyway.
You will do your worst because, well, you're not Jesus.

You were never meant to save your children.

That's His job.

So go ahead: Fail. Yell. Screw up. 

And in doing so, 
teach them about humility when you apologize. 
teach them about forgiveness when you ask for it.
teach them about God when you turn to Him for perfection instead of expecting it 
from yourself.
or your children.
or your spouse.

Stop holding yourself to a standard that you were never, ever, ever, ever meant to meet.

Let us then with confidence draw near 
to the throne of grace, 
that we may receive mercy 
and find grace to help in time of need.
Hebrews 4:16

media

reviews

I'm an active review blogger, a top Amazon reviewer, and a member of the selective Amazon Vine reviewing community. My readers are invested in feel-good stories and quality products, and that combination has led to drive interest and sales for items with higher end items (retailing from $500-$2000) like the the BOB Revolution stroller and Rifton Mini Pacer gait trainer to smaller items like books and bags and dolls.

I am most interested in reviewing toys, educational items for children, special needs equipment, and home decor, but even if your product isn't on the list, feel free to send a description to reviews@dinglefest.com and I'll consider it.


sponsored marketing campaigns

I'm very picky about who and how I partner with organizations. First, I publish my own content only, so it's an automatic no for campaigns asking me to cut and paste their pre-written posts. Second, I have to be able to see a benefit to my readers before I'll share anything with them. Third, I have to feel personally invested in the campaign. 

So far, only two campaigns have met those criteria: one on Fetal Alcohol Syndrome Disorders (post one, two, three, and four) and one featuring Compassion International (here). Contact me at campaigns@dinglefest.com if you're interested in a marketing partnership.


advertising 

I am selective about what advertising I allow in this space, not including any in the seven years I've been blogging. That said, I'm open to partnerships with like-minded organizations and individuals, so please contact me at ads@dinglefest.com with your proposal and, if it's acceptable, we can discuss rates.

Fetal Alcohol Syndrome Disorders: facts, not fears

When we first considered adoption, one acronym sparked fear in us: FASD. Little did we know that we would begin an adoption and fall in love with a child, only to learn the fact partway through the process that significant amounts of alcohol exposure had occurred in the womb.

We were already all in, and we learned a valuable lesson:

Fears paralyze us, but facts equip us. 

Here are some posts full of facts about FASD:

another diagnosis: Fetal Alcohol Syndrome Disorder

five things we should all know about FASD

an accurate FASD diagnosis matters

four reasons to fight stigma & support families

how good and pleasant it is, indeed

This picture generated more "likes" this weekend on Facebook than anything else I've ever posted.


And not just because of the amazing lizard shirt + seersucker puppy shorts + wild animal camo Toms combo, though Philip wore it well.


This handsome five year old saw me on my knees pushing Zoe's Rifton Mini Pacer so she could take steps without having to move the additional weight of the gait trainer (which, with all its accessories, nearly weighs as much as she does), and he politely dismissed me.


He wanted the job of helping his little sister walk around the playground, one we chose to visit specifically because of the accessibility features. (Local friends, it's Marsh Creek Park's play area, if you want to check it out.)


But to him, it wasn't a job. It was a joy.


Without any suggestion from me, he brought her over to the play wall, made for kids like Zoe to enjoy.


Then he enjoyed it with her.


 He wasn't satisfied with that, though. He directed her to the big play structure, where our other four were playing. Zoe wants nothing more than to tag along with her big brothers and sisters, just like any other youngest child.


Up... up... up... and down... down... down... they went.


Full of smiles, full of personality!


Zoe crashed hard on the way home, worn out from all the activity.


And my heart nearly exploded, for the love of two children born across the world from each other and made siblings in a whole 'nother country.

Amazing grace.
Behold, how good and pleasant it is when brothers
{and, in this case, their sisters}
dwell in unity!
(Psalm 133:1, italics mine)

resources

This page is and will always be a work in progress. I aim to list online and off-line resources - many free - that can help churches minister to and with people with special needs here. Please comment if you have any suggestions for me to add!

By summer 2014, I'll be adding a page titled "handouts" of my own print resources that you can freely use as long as you don't charge anything for the content.


Other blogs

The Works of God

Story Fork: A Community Engaging Disability {where I serve as a content curator}

Disability Concerns for the Christian Reformed Church in North America

The Inclusive Church

Church 4 Every Child

Diving for Pearls

All Access

Different Dream

Wrestling with an Angel


Disability Ministry Organizations

99 Balloons {where I serve as a consultant}

Joni & Friends

Key Ministry {where I serve as a consultant}

Mark 2 Ministries


Secular Organizations offering Support/Information Valuable to Churches

The Elizabeth M. Boggs Center on Developmental Disabilities

Disability Scoop


Special Needs Adoption resources

To be developed soon. 
{I used to list a popular special needs adoption website here, but I no longer can do so after hearing first-hand stories of unethical behavior.}

Books & curricula

Same Lake, Different Boat by Stephanie O. Hubach

Wrestling With an Angel by Greg Lucas

Special Needs, Special Ministry 
{currently out of print, but a new edition is available: Special Needs Ministry for Children}

My review of several special needs handbooks
and a direct Amazon link to the one I recommend most: Autism & Your Church, which is helpful for a wide array of diagnoses and not just autism

Recommended disability ministry book list from Bethlehem Baptist Church

Another blogger's review of A Different Dream for My Child by Jolene Philo

Another blogger's review of Lifeway's Special Buddies curriculum