the ministry of presence, aka "a lesson from Christopher and Maroon 5"

"I don't know how to help."

I hear that a lot. I say that a lot. I feel that a lot.

Just this week, a friend of mine whose son has complex medical needs is recovering from a hysterectomy. I brought meals, but that felt inadequate somehow. Another friend is in the hospital with her warrior son who is recovering from a new trach, whose heart defects are proving to be more complex than they thought, and whose condition needs to stabilize more before they can have schedule open heart surgery. Just down the hall at the same hospital, one of my best friends from high school is camped out with her little three-year-old rascal whose rare immune disorder renders his body unable to fight infection; last week that meant that all of his baby teeth had to be removed, and in a few weeks, that means he'll be getting a bone marrow transplant.

And I don't know how to help.

But Maroon 5 gave me a sweet reminder this morning.

source
That handsome boy in the middle is 10-year-old Christopher Warner. Last week, his teachers made a video to share how much Christopher loved Maroon 5 and Adam Levine, and a local radio station made it happen at their concert last night. Upon meeting them backstage, Christopher was so excited, he nearly had a panic attack. He had to lie down because he was so overwhelmed. It could have been an awkward moment, but?

The whole band laid down with him.

Goosebumps, y'all.
Just when we thought we couldn't love Adam Levine more, right?

When we don't know how to help, I think this is the answer. I think the ministry of presence is more than enough. Just being with someone speaks volumes of kindness.

Maroon 5's simple act with Christopher reminded me of a story my friend Emily Colson, author of Dancing with Max and single mother to an adult son with autism, tells about a meltdown Max had as a child in the grocery store one day. As he laid on the floor and Emily held him, she watched the wheels pass as other shoppers strategically avoided them with their carts. And then, she saw a pair of shoes. Looking up, she expected judgment, but the woman simply said, "Can I help?" Emily didn't know what could help, so she expected the woman would just leave. After some time passed, she noticed the shoes were still there. When Emily looked up again, the woman attached to what Emily calls the compassionate feet of waiting grace was still there. "I will wait until you can think of a way I can help," she said. And she did.

We like grand gestures. We like quantifiable measures of helpfulness. We like concrete solutions.

But, sometimes, our presence is a ministry of its own. Sometimes just being present is a gift like nothing else.

And Maroon 5 both gave and received a precious gift last night, as they were present with Christopher while he was present with them.

a letter to Mattel from my daughters

When your eight year old daughters get riled up about injustice and ask, "Mommy, can we use your blog for something?" the answer is obvious: yes.

They didn't know I've already written about why diversity matters in dolls or successfully pushed back on Amazon for their whitewashed selection of sale Barbies. My girls just knew that a new Barbie movie is coming out this week. When they saw all white faces on the movie's cover art, they were frustrated.

"When is Barbie going to have a black girl as the main character?" I don't know, I told them.
(I thought, probably never. But I didn't say that because I try not to pass down too much of my cynicism to them.)

"Have they ever?" I knew the answer, but instead of just giving it to them, we sat down together to figure that out. We looked at the cover art for the 29 Barbie movies made since 2000, most of which can be found here. Our findings? Only two included black Barbie characters on the front (6.9%), only one of those did so prominently (3.4%), and none featured black characters in the primary role. We clicked through to find out who was the voice actor for the only featured black Barbie on cover art, and the girls were dismayed to find that a white woman spoke for her. Then we looked up racial demographics of kids in the US and found that about 15% are black.

That's when their question came about using my blog.
(I'm pretty sure they think I have far more readers than I do!)
And that's when this letter was written.


Dear Barbie makers,

There are only 2 Barbie movies that have black and white girls as main characters, and 27 movies with just white skin main characters. 15% of the kids in the US are black, and it is not fair. 0% main characters are black and 7% black characters are on the front cover. Will you please make more movies with black people who are main characters and more black people on the front cover? Can you also make black people [in your movies] more dark please? We want you to do this because we are sisters, one white and one black, and we are a little upset about this, and all of the black people in our family are more dark.

From, Jocelyn & Patience

P.S. Please make darker skin black dolls too, and more Asian dolls because our sister is from Taiwan.
We'll mail it tomorrow, but I know sometimes the power of the internet can be more effective than snail mail. Plus, they asked specifically for me to share it here.

So, Mattel, what do you say? After all, I'm not the one asking.

photo by Rebecca Keller Photography

They are.

the lie of "I could never do that" or "I can't imagine"

Anyone who knows me knows I'm a talker. At the Global Access conference last week, my friend Mike complimented me as he passed me mid-conversation yet again, saying something like, "Look at your networking skills! You're always in a new conversation with someone else every time I see you!"

My reply? "Or maybe I just like to talk a lot!"

Confession: Mine is probably closer to the truth.

But sometimes I'm quiet. Or to be more accurate, I talk about the things that don't matter so much while staying silent about what's really on my heart.

When I do lay it all on the table -
the challenges of scheduling multiple therapy and specialist appointments every week, the uncertainty of knowing what Zoe's future looks like, the concerns about racial tensions in our country as the white mother of children of color, the difficulty supporting two second graders with drastically different educational foundations such that homework times can feel hellacious, our medicine regimen of 2-4 daily inhaler or nebulizer treatments and twelve pills a day between all of us and one injection a week and 4-5 physical/occupational/speech therapy sessions a week outside of school, my meal planning for a large family, and so on 
- the reply is usually some variation of "I could never do that" or "I can't imagine."

But if it were your kid, you could. You would.

And the look on your face usually tells me that you did just imagine what that might be like but you're afraid of offending me with what your imagination showed.

I wouldn't mind all of that, except that after the "I could never..." or "I can't imagine," the conversation usually ends. A long pause or a quick excuse tells me my truth was a little too truthy for you. Friendships are hard enough to come by in the midst of mothering a gaggle of kiddos with varying needs. At the risk of sounding pitiful, here's another truth: I need you. And maybe you need me too. We were created for community, after all.

We can't be truth tellers if we're afraid of the truth, if we're afraid to admit that, maybe, you just don't want my struggles or you're glad they aren't yours but that you love me and are glad to know what my reality is and are willing to listen any time I want to talk. (And that's okay, because I don't really want your struggles either, if I'm telling the truth.)

I like to talk. I do. But lately I've been convicted of my laziness with words at times. I don't think anyone who has ever said "I could never..." or "I can't imagine..." is intentionally lying - I know I wasn't meaning to when I used to say them - but a lazy lie lacks truth all the same.

Let's be truth tellers, y'all. Part of that is giving others permission to tell their truths, even the uncomfortable and hard and messy ones.

speaking of mess, here's a little of mine. i snapped the pic because i was struck at how beautiful my mess looked in the late afternoon light. isn't that just how it is, though? all our brokenness has beauty in the right Light.

let's be truth tellers and not mask wearers

When did the people of Truth (myself included) stop being truth tellers instead of mask wearers?


What if... 

...we stopped presenting polished versions of ourselves and let it all out, even those parts the world says we should hide?

...we cared less about our kids' behavior and more about their hearts?

...we sought to love people rather than impress them?

...we valued differences instead of ignoring, dismissing, or ridiculing them?

...we really truly wholly believe that every person - including you and me - has a story worth sharing and a voice worth hearing?

...we answered honestly when asked, "How are you?" and
...we were ready and thankful for genuine answers to that question?

...we acted like God's purpose in each of us mattered so that we stopped trying to pretend to be someone else?

...we dealt with our own logs instead of attacking the specks of others?

...we offered up our broken pieces to create a beautiful mosaic instead of hiding each chip under the rug to never shine?

What if?

In my writing and speaking and friendships and family, God is stirring up great things. I'm realizing more and more that I need to stop hindering that work by trying to be who I think I should be instead of who He made me to be. To be honest, I don't know exactly what that looks like, but I do know one thing for sure: I want to be a truth teller and not a mask wearer.

Who's with me?

where I'll be writing & speaking in 2015

This blog has been quiet, in part because of the holidays (Christmas break doesn't offer a lot of writing time!) and bouts of sickness (when does cold and flu season end?) but also because I've been elsewhere online. To find me when this space in quiet...


conferences

Global Access Conference
presented by Joni & Friends
February 17-20, near LA

The Global Access Conference will bring together disability leaders, ministers, educators and practitioners from around the world. It’s an unprecedented opportunity to share experiences, forge strong working relationships, and learn how to practically and effectively promote disability ministry in the Christian community.

I'll be leading two sessions

  • The Special Needs of Foster and Adoptive Families and 
  • What are some practical implications of the verse "Blessed are the nations whose God is the Lord? (a roundtable discussion follow-up to Nick Vujicic's main stage talk). 



Accessibility Summit
McLean Bible Church
April 17-18, near DC

I'm not speaking this year, but many good friends will be - Matt Mooney, Harmony Hensley, Jolene Philo, Barbara Newman, Amy Kendall, Marie Kuck, Jackie Mills Fernald, and Emily Colson - so I'm excited to learn, enjoy, and recharge at this well-established special needs ministry conference. I am, however, moderating a pre-conference panel of some AMAZING leaders titled Tips, Tweaks, & Tune-Ups for Sunday School Curriculum & Classrooms. For more information, click here.


CAFO 2015
Longhollow Baptist Church
April 30-May 1, Nashville

The Christian Alliance for Orphans’ CAFO2015 Summit inspires and equips Christians to care for orphans with wisdom-guided love. The CAFO Summit has become the national hub for what Christianity Today called, “the burgeoning Christian orphan care movement.” Last year’s conference drew 2,600 foster and adoptive parents, orphan advocates, pastors and leaders from 35 countries.

Last year I spoke about Making Your Church a Welcoming Place for Families with Special Needs, and this year I'm following that up with a session titled Post-Placement Church: Children's and Youth Ministries That Are Safe Places for Special Needs.


Southeast Disability Ministry Summit: Irresistible Church

Christ Covenant Church
September 18-19, Charlotte

I'll be joining John Stonestreet and Emily Colson (who is truly one of my favorite people in the world!) at this amazing conference hosted by Joni and Friends Charlotte. My workshops will be on Joy Prom 101, which I'll co-lead with Katie Honeycutt, and The Special Needs of Foster & Adoptive Families. This conference will have a substantial ministry track as well as smaller family/caregiver and worldview tracks. If you're in the Southeast, you don't want to miss this!


Together for Adoption 2015: Simple
Summit Church
November 5-7, Raleigh

I'm not sure if I'll be speaking at this conference this year, but since it's in my hometown, I'll definitely be there!


*More to be announced soon*
as I'm in talks with a few other adoption, women's, and children's ministry 
conference organizers to firm up those opportunities
(Side note: I'm available to speak on a variety of topics related special needs parenting, adoption/foster care, disability ministry, and extending grace to ourselves as women, so please contact me if you're looking for a main stage speaker, workshop presenter, or panel member for an upcoming event. That said, I do have to be selective about speaking engagements because of family and local church responsibilities that come first, so please understand that I turn down great opportunities each year and yours might have to be one of them.)

regular contributions and guest posts


I also contribute guest posts elsewhere, and I'll do my best to link up to them more regularly here.

(Also, I'm starting to use my Facebook and Twitter
pages more to interact with readers, 
so please like it if you haven't yet!)

So please forgive me for being a stranger here from time to time! I hope to see you around elsewhere and, of course, here too. As a matter of fact, I have a bunch of new posts coming soon that you are not going to want to miss! (Way to leave you in suspense, huh?)