The power of music

Note before you read this: I wrote this, but never posted it (oops!) about a week ago. I am now - praise God! - through my tough weeks. I might write more about MRSA part two (which is what made the past couple of weeks tough), but I don't feel like doing so right now. Now to the post ...



This has been a tough week, and next week will probably be another tough one. I was sitting here reflecting on it all while I listened to 91.1 (our local Christian station) and was struck at the power of music and at God's perfect timing, since all of the songs in this post played in the past half hour or so.



On days of gray

When doubt clouds my view

It's so hard to see past my fears

My strength seems to fade

And it's all I can do

To hold on, til the light reappears

Still, I believe though some rains bound to fall

That you're here next to me

And you're over it all



(chorus)

Lord, the sky's still blue

For my hope is in you

You're my joy

You're the dream that's still alive

Like the wind at my back

And the sun on my face

You are life

You're grace

You are blue skies

(Point of Grace, Blue Skies)



So here's the deal: I have another MRSA infection and had another minor surgery to deal with it. Once again, I'm on hardcore antibiotics. Once again, they're making me sick. And it's more painful all around this time since the infection is deeper this time (though, thankfully, still localized to one area and not systemic) and since it's in a spot where it can be more easily irritated than last time. My joints are acting up a bit since my immune system is having to kick into high gear to fight this off. And my thyroid meds are off right now, so my resting pulse is dangerously high, so all the activity I had been doing is on hold for now until we get that regulated again. Oh, and I'm getting over a cold. But you know what? I'm not letting these circumstances squelch my praise.




I remember when

I stumbled in the wind

You heard my cry

You raised me up again

My strength is almost gone

How can I carry on

If I can't find You


As the thunder rolls

I barely hear You whisper through the rain

"I'm with you"

And as Your mercy falls

I raise my hands and praise the God who gives

And takes away


I will praise You in this storm


And I will lift my hands

For You are who You are

No matter where I am

Every tear I've cried

You hold in Your hand

You never left my side

And though my heart is torn

I will praise You in this storm

(Praise You in This Storm, Casting Crowns)



I heard this next song for the first time on the way to what seemed like my millionth appointment with yet another specialist when I was pregnant with Robbie. It just seemed so appropriate and will always be a song that I link with these first couple of years of navigating the big medical terms I didn't know how to spell before they were used to describe my health. None of it seems as big as it did even a year ago, so I know I will continue to adjust and get used to my new circumstances. And in the midst of having my health struggles, I've also had these two beautiful children added to our family. That's why it's so hard for me to sum up the past two years: trials intertwined with blessings, both of which have made Lee and me grow closer to each other and, more importantly, to God. In a world where self-sufficiency is upheld as something to aim for, I relish in resting in the sufficiency of God. I'm not sure I would have been able to honestly say that two years ago.



You would think only so much can go wrong

Calamity only strikes once

And you assume this one has suffered her share

Life will be kinder from here



Oh, but sometimes the sun stays hidden for years

Sometimes the sky rains night after night

When will it clear?



But our Hope endures the worst of conditions

It's more than our optimism

Let the earth quake

Our Hope is unchanged



How do we comprehend peace within pain?

Or joy at a good man's wake?

Walk a mile with the woman whose body is torn

With illness but she marches on



Oh, 'cause sometimes the sun stays hidden for years

Sometimes the sky rains night after night

When will it clear?



But our Hope endures the worst of conditions

It's more than our optimism

Let the earth quake

Hope is unchanged



Emmanuel, God is with us

El Shaddai, all sufficient

We never walk alone

And this is our hope



But our Hope endures the worst of conditions

It's more than our optimism

Let the earth quake

Our Hope is unchanged

(Our Hope Endures, Natalie Grant)



I know God ordained this precious paradox, that all these health problems have emerged at the same time that we were blessed with our two sweet children. It's not hard to remain full of hope and perspective when I have a little girl squealing as we pull into one doctor's office because she remembers that they have toys ... or another office because she remembers that they have candy ... or another office because she knows that's where Mommy has her labs done and thinks that it's really cool to watch them take blood from Mommy's arm (yes, I do think it's weird and a bit morbid that she gets so much joy from that!) ... and so on. I have it good. I am blessed.

Real conversation this morning...

Lee: Did you sleep well last night?
Jocelyn: Yes!
Lee: Where did you sleep?
Jocelyn: In the bed.
Lee: Were there pygmy goats in there?
Jocelyn: Yes.
Lee: Oh.
Jocelyn: I eat a goat.
Lee: Atta girl. That'll teach those pygmy goats.

Um, okay.

(By the way, we regularly ask a random question, such as the pygmy goats one, to see if we're talking to the real-world-Jocelyn or the Jocelyn-with-her-mind-in-her-own-imaginative-place. Clearly, we had the latter this morning!)

oh happy day!

Hey friends! I promise I will inundate you with pictures again soon, but I've been busy getting things in order for the summer semester of grad school (though I'll spare you the details there, since it'll turn into an anti-ECU rant; the end of the story is that everything has gotten worked out!) and being active in general. Yep, being active. My joints aren't feeling 100%, but I have felt better the past five days than I've felt in at least a year, maybe longer. Since Saturday, I have swum laps at the pool twice, done a workout video, gone on a couple walks, spent a lot of time working in the garden, and used the Wii Fit a few times ... and I'm feeling fantastic! I've dropped my prednisone dose to what it was while I was pregnant, and I'm trying to drop it once more, which will put me at a lower level than I've ever been.

And, if all this wasn't good enough news, take a look at this (sorry that it's blurry!):
From May 2009
Yep, that's my wedding ring and engagement ring. On. my. hand! My fingers were too swollen for the past five weeks to wear them, and I was about to order a substitute ring (and, for a short while until I realized it wouldn't work for a number of reasons, considering getting a tattoo of a wedding band so I didn't have to deal with this). But my heart's desire was to be able to wear the ring Lee put on my finger when he popped the question on March 28, 2003, and the one he slid on when we were married on June 18, 2005. I wasn't bold enough to really hope for this, though, since a week and a half ago I was in near tears at a department store when I realized that my fingers had swollen so much (from a size 7 to a size 9) that most women's rings weren't even available in my new size and many couldn't be resized that large. That was May 9, eleven days ago. Today I'm wearing my size 7 rings. They fit perfectly, whereas they were loose enough pre-RA that I was considering having them resized to a smaller size, so my hands aren't back to their normal size yet. But no complaints here. My rings are back on my hand. I don't think words can adequately describe my joy.

Yesterday in numbers

6 weeks, 1 day: Robbie's age yesterday for his six week check-up

7lbs, 12oz: Robbie's weight at his last appt when he was 2 weeks, 3 days

10lbs, 5oz; 25th-50th percentile: Robbie's weight yesterday

1: increase in percentile since his birth (with another one likely if he continues to gain as quickly as Jocelyn did, and so far he's on track to do so!)

22.5inches, above the 50th percentile: Robbie's length yesterday

38cm, 25th percentile: Robbie's head circumference (like Jocelyn, he has a small head and teeny tiny feet; the newborn shoes we have for him still fall off!)

38.5inches: Jocelyn's height (since she insisted on being measured too and since the nurse was willing to humor her ... I didn't see what her head measurement was, but she had that done too!)

5: Number of times the nurse asked Jocelyn's age. Yes, she is really tall for her age; yes, I am sleep deprived with a newborn so I might not be at my sharpest mentally right now. However, I do know my daughter's age. (However, Lee doesn't know Robbie's age. At baby dedication on Sunday, he said Robbie was five weeks old. Umm, he was actually six weeks. But I'll give Lee some wiggle room there; I suppose he wasn't technically six weeks old until 11:48pm Sunday night, and the dedication was in the morning!)

1: Number of times I got my skirt caught in Robbie's car seat while putting it in the car, thus flashing the (thankfully empty) parking lot

5: number of seconds it probably actually took to get my skirt out from his car seat contraption

about 500: number of seconds it felt like it took to retrieve my skirt from said car seat

15: approximate number of shades of red I turned while my skirt was above my waist

Little man's first bath

It took forever for Robbie's umbilical cord stump to fall off. He was just shy of four weeks old, and I was excited to finally be able to give him a bath. Here's the documentation of the event!

Pre-bath with Mommy
From April 2009, Album 2


Jocelyn in position to watch the bathing!
From April 2009, Album 2


And the actual bath...
From April 2009, Album 2


He was, as typical for little man, laidback about the whole thing.
From April 2009, Album 2

From April 2009, Album 2


We didn't get a picture of her trying to stir her brother, but - trust me - it happened!
From April 2009, Album 2


All clean!
From April 2009, Album 2

From April 2009, Album 2

From April 2009, Album 2

From April 2009, Album 2


And some pre-dressing shots ...
From April 2009, Album 2

From April 2009, Album 2

From April 2009, Album 2

From April 2009, Album 2

From April 2009, Album 2

From April 2009, Album 2

From April 2009, Album 2

From April 2009, Album 2

From April 2009, Album 2