why disability ministry needs a global, missional focus(also, how orphan care and disability ministry intersect)

I've written about Reece's Rainbow several times before now, but this video from ABC News is more compelling than anything I've written. Watch, and understand why churches can and should have a global view and a missional perspective of disability ministry. (It will begin with an ad, but it should be a brief one!)

My husband and I are planning to add to our family in partnership with Reece's Rainbow, though we're currently open to other medical and intellectual special needs as well as Down syndrome.

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Clinging to joy from a broken body

I didn't plan to take a week off from the blog. God has called my time and energy and thoughts elsewhere, though, between last Monday's post and yesterday's, and I've been still and resting in him.

Rest is something I struggle with. I don't do rest well. I like to be on the move. I like activity. I like talking. I like doing. I don't particularly like being still, but God has stilled me this week.

And it's been sweet.

This year has been full of great blessing, but it's also been a tough one. Every year our family writes a Christmas letter, and we haven't written ours this year. Maybe it will be a New Year's letter. Or Valentine's Day. Or maybe even Easter. 

I haven't written this year's letter because I didn't know what to write. Last year I didn't have the words either, but I forced them and wrote something that better resembled the reality I wanted than the reality I faced. I won't make that mistake again this year, so I'm not writing our letter until I'm ready to write an honest one.

God took my breath away figuratively a couple weekends ago, with the success of our respite night in which we opened wide our church doors to our community to provide free childcare to kids with special needs and their siblings. But a few weeks before that God had taken my breath away in a more literal way.

If you've read this blog long, you know that I'm in my late 20s but have joints that better resemble someone in their 80s due to rheumatoid arthritis. In RA, the immune system attacks the lining of joints, causing them to swell and rubs against the bones; as that friction erodes the surface of the bone, redness and pain and swelling occur. It can also cause inflammation in some organs. My RA went unchecked and undiagnosed for the first year I had it, and then it was mostly untreated for another year because I found out I was pregnant with my son a week after I was diagnosed and all the effective treatments are untested in pregnancy. Once I was diagnosed, my hands were already affected enough that opening any sort of jar, unlocking many doors, and unbuckling my kids' car seats is a challenge, if not impossible. 

Now we've found a sweet spot of drugs and supplements and lifestyle choices and diet that has my disease in check. But the bone damage in my hands and the limitations to those joints can't be undone. The complications of a previous treatment have left me with scars from MRSA infections and susceptibility to future infections. The knee surgery I had a couple months ago is the result of RA damage during the first two years of disease activity. 

And a couple weeks ago - just three days after our respite night - I learned that my difficulties breathing over the past year, more acute in the past month, are likely the result of RA-related lung disease, which has resulted in asthma. So we've added a few more words to my charts, a few more meds to my cabinet, and a few more doctor's appointments to the calendar.

And I've wrestled with joy. Christmas ads would have you believe that it can be bought. Each of Gap's sale emails to me this month, like the one below, bore the words, "Joy Alert!"  


You can't buy joy at Gap. About 2,000 years ago, it was found in a more unlikely place than that.

And in the same region there were shepherds out in the field,
keeping watch over their flock by night. And an angel of the Lord appeared to them,
and the glory of the Lord shone around them, and they were filled with great fear.
And the angel said to them,
“Fear not, for behold, I bring you good news of great joy
that will be for all the people.
For unto you is born this day in the city of David a Savior, who is Christ the Lord.
And this will be a sign for you: you will find a baby wrapped in swaddling cloths and lying in a manger.”
{Luke 2:8-12}

This year I am thankful that joy isn't a feeling. It's a reality. It's the truth that God loves me enough to allow the worst thing to happen - the death of his son - so that the best thing could happen - the saving of my life and soul. 

In light of that, I can live in a broken body, with difficulty running and grasping and breathing, knowing that God is enough and that he has allowed me to experience a little bit of what the families I serve each week experience daily. Often, we are advised to steer clear of Romans 8:28 when comforting people whose pain is fresh, but I don't think we should always heed that advice. We certainly shouldn't drop those words unkindly or dismissively as little bombs in Christian wrapping paper. But the words are true. And even when my pain is raw, I have clung to them: 

And we know that God causes all things to work together for good
 to those who love God, to those who are called according to his purpose. 
For those whom he foreknew, he also predestined
 to become conformed to the image of his son,
so that he would be the firstborn among many brethren;
and these whom he predestined, he also called;
and these whom he called, he also justified;
and these whom he justified, he also glorified.
What then shall we say to these things?
If God is for us, who is against us?
He who did not spare his own son, but delivered him over for us all, 
how will he not also with him freely give us all things?
{Romans 8:28-32}


Merry Christmas, my friends. May the amazing nature of his joy take your breath away this holiday season.

"unless you are a member of a...specific church..."

I found a promising line buried in an article about a thrift store started by two entrepreneurial parents of twin boys with autism. You can see the boys in the picture to the left. Their momma said that for families affected by autism "unless you are a member of a specific school or specific church, there’s nothing there."

I'm saddened that these families have little community support.

However, I'm greatly encouraged that churches in her community are seen as places of support and hope for families with autism (and other special needs).

My prayer is that this may that be the truth for all churches in all communities!

That, my friends, is why I write this blog. To Him be the glory.

~+~
I won't be posting my weekly disability ministry round-up this week, but it will return next week. It usually posts on Mondays, but I've been enjoying the blessings of family in the past few days. I hope you have had that same opportunity!

disability ministry weekly round-up {12-19-11}

Happy Monday! I'm going to start things off with a personal question of mine, because I know I have several mommas and dads of kids with special needs who read this and because I know asthma is more common among those with disabilities: Any tips for someone newly diagnosed? (And, yes, that newly diagnosed gal would be me, possibly due to lung complications of rheumatoid arthritis.)

And now on to the links for the week...

Things God does with tears Good reminder from John Knight.

26 Sensory Integration Tools for Meltdown Management Helpful for parents and churches.

“We do not look to what Michael can do here in this life, but instead look to the One. . .” Touching story of a church body welcoming a young boy - who happens to have a disability - and his family in a fourth grade Advent candle tradition.

Bearing false witness against thy neighbor (with Down syndrome) Insightful article juxtaposing the commandment not to bear false witness and the biased, incomplete, and dangerous information often provided to parents when their unborn child is diagnosed with Down syndrome

God Only Gives You What You Can Handle? I guest-posted last week on SupportforSpecialNeeds.com, and I linked to it then. Today I link to it again because you'll want to return to read the comments (and maybe even join the conversation yourself!).

What is a Champions Club? Sam Luce gives a great description of one model of special needs ministry.

Special Needs: You're Not Forgotten Anymore A challenging and helpful guest post by Craig Johnson on KidMin360.com about why and how to do special needs ministry

And ministries that are welcoming people with disabilities and their families...

Why I don't like the saying, "God never gives you more than you can handle"



Two days ago, I had the privilege of guest posting at supportforspecialneeds.com. I am thankful that Julia gave me the opportunity to do so, but the question she posed was not an easy one: "Do you have a spiritual perspective on why children have disabilities? Does God choose particular children/parents?" Here's the beginning of my response and a link to the full post:



I am bothered by cute little quips like “God never gives you more than you can handle.”

Not only is that sound bite found nowhere in the Bible, but it also portrays a weird image of God. That saying makes it sound like God is a sort of cupid, taking aim with his bow and pausing each time to consider, “Hmm, is she strong enough? No, not at all. I’ll let her continue to live a blissfully easy life… but, ooh, that one. He is strong enough. Let me grab the arrow labeled ‘have a disabled child’ and shoot it straight at him…”


To read the rest, click here

And if any of you want to read my friend Katie's post on the same topic, you can find it here.

Thank you, Julia, for inviting me to share a Christian perspective on disability!