the worst 12 minutes of my life.

Those of you on Facebook have already gotten the CliffsNotes version of this, but here's the full story. It's graphic in some parts, but it's how our Thanksgiving began...

The day before Thanksgiving, our friend Angie got off early from work and came to hang out with us. Lee was also home early, and he offered to cook up something fancy for dinner. The rest of us went on a walk to pick up my prescription at the drugstore less than a mile from the house. There, I treated the kids to candy for the walk home, and Robbie savored his York peppermint patty while Jocelyn felt like we got a double treat with two peanut butter cups in the Reese's packaging. We sat down at the dining room table for some tasty garlic Parmesan chicken and pasta, and we all had seconds.

It was a delightfully normal day.

I had a rare evening cup of coffee while Angie and I chatted and Lee put all the kiddos to bed. After a bit, we moved to the family room and kept chatting while I sorted laundry. Eventually, Angie joined me in some of the sorting. (How blessed am I? A friend who doesn't mind helping me sort laundry and a husband who handles bedtime most nights, even on nights when he also cooks dinner. So much more than I deserve!)

As we chatted, time got away from us. I didn't look at the clock, but it was a little after 11 when Angie thought she heard one of the kids. I know the time in hindsight, because I can backtrack from the time when I pulled out my phone 25 minutes later to post this:


I hadn't heard what Angie heard, so we were quiet for a moment as we listened for other noises. None came, so we went back to our conversation. And then, five minutes after we paused our chat to listen for sounds, we heard a weird, other-worldly noise that I can only describe as part gurgling and part choking and part growling. As my eyes connected with Angie's, I know my face mirrored her expression that something was terribly wrong.

I sprang up and headed down the hall, Angie behind me. Realizing the noise came from Robbie's room, I rushed to him. His face was partially smothered against a pillow, his bed and his body covered in vomit. As he flailed his arms and legs and looked dazed, I moved that pillow and spoke comforting words to him and thought, "Poor thing! It's an awful feeling to wake up by throwing up." I quickly grabbed a clean blanket, laid it on the floor so that I wouldn't have to clean the carpet as thoroughly if he got sick again, and I scooped him up to move him to the ground.

Except he wasn't scoop-able. You can scoop something soft or relaxed or loose, like a limp child who feels miserable with a stomach bug.

You can't scoop a child whose torso is stiff and rigid and whose legs and arms are convulsing rhythmically. You can't comfort a child who is not conscious or responsive even though his eyes are wide open, staring through the world as though he is absent from it.

I knew. I'm trained as a special needs professional to know.

My boy was having a seizure.

I thought, "No, this isn't my child who should be having a seizure. Zoe's cerebral palsy makes her more likely to do this. Robbie is not my kid with special needs." As my heart crushed with the full realization of all I know about seizures (for example, they can be a one-time fluke following a head injury or during a fever or other illness and are much more likely to recur if factors like those aren't present... and? none of those factors were part of this case), my training kicked in.
Ask someone to go get help. Roll person to side. Move anything potentially dangerous so the person can't injure himself. Finger-sweep person's mouth and use a bulb syringe to suction their nose to remove the vomit and reduce respiratory distress. Observe closely because most seizures are too short for emergency personnel to see them, and you'll have to describe it to them. Have someone call 911. Wait next to the person because there's nothing else you can do until after the seizure is over.
Except no training can prepare anyone for "the person" being your healthy, vibrant, cheerful, lizard-loving, cuddly boy who is unresponsive as he thrashes on the floor next to you.

Nothing in my first aid certifications ever mentioned that my tears would be falling on "the person" as my friend prays over us and admits to God that she doesn't know what to ask him for in that awful, awful moment.

No one expects "the person" to be your only son.

The training particularly stings when you know, as the minutes creep by, that your son is seizing far longer than the typical seizure. The training rips your soul when you know that your son could have been deprived of oxygen as he was unable to remove himself from the pillow when his face was pressed against it and his mouth full of the earlier meal. The training lets you know that the person won't react at all as the paramedics put his IV in, but they don't tell you that you'll hope against that knowledge, aching for it to be different this time because "the person" is your son. The training says nothing about your friend having to physically pull a sweater over your head because you're too limp and helpless to put it on yourself as you are relieved by the EMTs who carry this boy who looks like yours but isn't acting like yours out onto a stretcher.

This story is full of grace, yes, like the preciousness of having Angie there to get Lee for me when I knew Robbie was seizing and to pray over us and to get my shoes and to pack other items and then to stay with the girls as we headed to the hospital.

Like the girls only stirring slightly and not fully waking up in the midst of the chaos.

Like the protection of God having us in the family room where we would hear Robbie, when I would usually be in our bedroom at that time of night, out of earshot for anything quieter than a cry.

Like the knowledge and skills He had provided me with in advance so I knew how to identify the seizure and what to do with that information.

Like the toys we had by the door to bring to Grandma and Grandpa's house for the holiday but which Angie threw in our bag, in hopes that Robbie would be himself again to enjoy them.

Like the realization, even as I climbed in that ambulance and watched them medicate my son to stop the seizure that had lasted at least 12 minutes and as many as 17 minutes, that God's grace was all over this situation.

As Robbie's eyes closed with the peace brought on by Versed and as I knew that he wouldn't wake from it until morning and that - given the possibility of oxygen deprivation - he might never be fully himself again, I clung to that grace as we raced toward the hospital and complete uncertainty.

Part two tomorrow... but I'll give away the spoiler that Robbie is himself again now. Grace.

Solid resources that are FREE? Inclusion Fusion (all week) and the book Trusting God by Jerry Bridges (on Kindle today)

Want to equip yourself or families you love as you work together to include people of all abilities in the local church? Here are two phenomenal resources that are FREE:

  • Inclusion Fusion is up and running for the second year, now through this Friday. It's an online, video-on-demand special needs ministry conference where you can watch a little or a lot... whatever suits your needs and interests. I wasn't able to record a video this time around, but several folks who I know and respect are represented - including John Knight from Desiring God, Mike Beates who wrote Disability and The Gospel (which I'll be reviewing soon), Katie Wetherbee who is speaking about the needed topic of bullying, and Cara Daily whose presentation last year on autism was the most helpful one of the conference to me personally. Here's a post on how Inclusion Fusion works.
  • One of my favorite theological books of all time, Jerry Bridges' Trusting God: Even When Life Hurts, is free on Kindle today. Even if you don't have a Kindle, buy the hard copy. This is a book that EVERY ministry leader, especially those wading through life's hurts with those they serve, needs to have (and I also recommend it to any person wading through those hurts, leader or not). It's neither shallow nor dense, and his writing style is easy to read while sorting through difficult topics in the Bible and life. Read it, and be fed and encouraged.

Thanks for your continued prayers for our family. Zoe has been home for four months, we're well into physical and occupational therapy for her, and our house is nearly unpacked from our spring move... in other words, life is almost as normal as it gets around here, so regular posts on the blog should resume soon. 

why I'm hopeful about the future

because of this girl


She has her own sense of style. (This was Wacky Wednesday at school, but when I asked her if anyone was dressed in ordinary clothes or if everyone was wacky, she said, "I think I was dressed in ordinary clothes. This outfit is pretty normal for me." And so it is.)


She sang her heart out several dozen times on her little sister's birthday. Who knew the Happy Birthday song could be so spunky?


But most of all, because of this:


Oh, my girl. I am humbled to be your mama.

because of this boy

He loves his dinosaurs. He has declared his intent to marry his friend Hannah when they grow up, purely based on her collection of dinosaurs.


But when Zoe fusses, I often find her like this:


Dinosaurs are his love language, so sharing them is the best way he knows how to express love to her.


Unfortunately, I think she might have fussed more because of her brother's dino friends (some of those spikes are sharp!), but this is what selflessness looks like for a three-year-old boy.


because of this girl


She didn't actually vote, despite what her sticker says (a wee bit too young...), but she's one of our country's newest citizens and she "helped" me fill out my ballot by attempting to grab the pen.


As I wonder what the future holds, I am heartened by these family pictures:



We never thought we'd adopt in 2012, we never thought we'd have a child born to another mother in Taiwan, we never expected another baby to join our family, and we are still learning more every day about cerebral palsy and what her future might be. God surprised us in wonderful ways, and we're glad He's in control.

We can't wait to see what other surprises He has in store.


Now to him who is able 
to do far more abundantly than all that we ask or think, 
according to the power at work within us, 
to him be glory in the church and in Christ Jesus throughout all generations, 
forever and ever. 
Amen.
{Ephesians 3:20-21}

three birthdays in one day! {sweet Zoe, our friend Lily, and Morning Light Ministries}

To celebrate Zoe, we're going to The Cupcake Shoppe this evening, and we'll get Zoe something chocolate-y. (We discovered at the NC State Fair that she is willing to reach for anything covered in chocolate, so it seems fitting!) I just checked their menu, and I think it'll be the this one:

Mmm.

To celebrate Lily, we posted this picture on Facebook. Lily is the women's counselor for the crisis pregnancy center that Zoe's original family contacted when she was born, and their shared birthday connected Zoe and Lily in a special way. We love Lily and are so thankful for her!


 The sign says "Happy Birthday!" in Mandarin Chinese.


Love our little ham!

Now on a more serious note, Zoe has a birthday request...

Zoe says, "This is my serious face, yo."

The wonderful team at Morning Light Ministries cared for Zoe in her first eight months of life, and their association officially turns 1 today. (They've been serving for longer than that, just not independently). While they facilitate a handful of adoptions, their primary purpose is to show Christ's love for women and children as a crisis pregnancy center. They care for more than just the baby in the womb; they love these women well with counseling (continuing long after the baby is born for those who choose life and including mothers who have abortions), a women's home, and supports for single parents (like a food pantry, a free childcare center for at-risk little ones, and small groups), as well as ministry through the local church there and abstinence education in schools.

In Taiwan, more babies were aborted last year than born.

Let that sink in for a moment.

More pregnancies ended in abortion than life in Zoe's country in the year she was born. I wrote about the travesty of that in New York City, and it is no less tragic on the other side of the world. The work of Morning Light Ministries is truly the difference between life and death for many babies in Taiwan.

In fact, if the Morning Light team was not serving as they do, our Zoe might not be here to have her first birthday. In honor of Zoe's first birthday, would you consider giving to Morning Light to sustain the work they are doing? You can give two different ways:

  1. By mail: Write a check to Central Missionary Clearinghouse, mail it to the following address, and include a note that it is for Morning Light Home (writing it in the memo line is NOT enough): CENTRAL MISSIONARY CLEARINGHOUSE
    P.O. Box 219228 - Houston, Texas 77218-9228
  2. Online: Go to http://www.cmcmissions.org/, scroll down, and click on the "Click & Give" graphic. Log in, select "Morning Light Ministry - Luke Pan" from the drop-down list, and give. A small processing fee will be deducted (for example, that fee ranges from $1 to $3.30 for a $100 donation, depending on the method of payment), and the rest of the funds sent to Morning Light. 
If you're not able to give at this time, would you pray for them? 

Thanks!